The study nurse and the PA were just so excited to hear how David's first 2 weeks on the new trial med went. They said everyone has been reporting that the side effects are minimal and so much better than anything else so far. Their little faces were lit up like we were at Disney! Truth be told, David has tolerated it very well, had a rough couple of days about midway through that we've now attributed to a virus and not the drug, since it went away. Happy dance, praises!
All his bloodwork looked good too. So on to the first infusion. Which they also seem to think is about the best thing since sliced bread. They don't expect many, if any, side effects from this round but warned him of the serious ones to look out for. I'm wondering which round they do expect the side effects to happen?
The infusion was pretty easy except for the hour wait for the drug to get there. What? Where was it anyway? They said most people either feel fatigued or high energy the first 24 hours after. I wonder which David will have. Just feeling normal would be great! This is the final waiting room I waited in. I wonder about those bouncing letters? Everything at MDA is pretty orderly, never seen any thing like this. Maybe the letters are ambulatory? Maybe the drug was ambulatory? 😁
So after a day of hurry up and wait, we were back home about 7pm. We go back the end of May.
Please continue to pray for:
1. No side effects
2. No more cancer
3. Many friends, including a 4 year old named Addy whose treatment for DIPG is no longer working. Devastating prognosis.
We count our blessings.
Thank you for loving us!
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