A hard days night

Today began at 2am since we decided to make this a one day trip and they scheduled David's first appt at 7am. So we left at 3am. We had no problems and arrived a stinking hour early. So we went to Whataburger for breakfast before heading in to MDA.

I am not a fan of the AM hours before about 9. Just saying.

This is the second time we've had a 7am blooddraw and he didn't get in until after 8. Grrr.

Then we waited for the Dr. The nurse called us back. She said our research nurse was not there so Dr. T would be in to see us. Knock at door and in comes a PA. She says Dr. T not there, so Zita, another PA will be in. Then knock at door and Shehanie, our research nurse comes in. Then another nurse comes and gets David for more blood because he didn't get enough at 8. While David went to do that, knock at door and Dr. T comes in.  Who's on first? Does anyone really know what time it is? Does anyone really care? 🙄

Anyway. They all agreed that all the bloodwork looked great. And we could go on to get the infusion. But wait. They ask about side effects David is experiencing? Yay no stomach issues to speak of. A slight rash that has gone away. He also mentions that his back has been aching. We have read this is one of the most common side effects. But they decide he needs an xray of his spine. Just to rule out metastisis. And they want a full bone MRI next time. So instead of going to the infusion we stop for the xray.

Then on to the infusion. They call him right back! And get everything ready. Then we wait. An hour. Because the drug is not there yet. This happened 2 weeks ago too. Where is the drug? Downstairs in the pharmacy. Ugh. Finally it comes, takes about an hour and we are out!

It's now 2pm. We are tired and hungry.

Lunch and home!

I just checked online and the xrays show no sign of metastisis. Yay! But I guess he'll still have the bone MRI anyway. We finally met the whole deductible/co-pay, so whatever is fine. Do it now before the insurance year starts again in September!

It was a good day, all things considered.
We are anxious for the scan results in two weeks, but we remain optimistic!

Please pray for clear bone scans and shrinkage/disappearance of the other stuff, no more side effects, less back pain. And a good nights sleep!

Thank you for loving us!