I think I have mentioned before how when we finally get in to see the Dr. they want to ask questions and exchange pleasantries much longer than we want to. Because what we really want to know is WHAT DID THE SCANS SHOW!? Then we can talk.
So, I'll get that out of the way first and you can stop reading if you want then because there is other info I want to record.
So.......the disease is stable again! Yay!
And the rest is this.
Because David has had a bummer of a time the last 3 months with stomach/intestinal issues, and has lost 20 pounds! (anyone besides me find those extra pounds?), they gave him the choice of taking weekends off the meds again or dropping down the dosage and staying on 7 days a week. He and the Dr. agreed that consistency might be the best so David will reduce the dosage but stay on the meds all week. They are pretty sure this will help resolve his issues. He can let them know if it doesn't help. They are all about finding a balance between treating the cancer and being able to function as normally as possible. He also gets to take a week off to recover. So yay!
Also at some point he developed a blockage/aneurism in an artery that goes to his spleen. There is some damage to a small part of his spleen. They reminded him to continue is aspirin regimen, which he had forgotten to take for about 3 weeks! Oops! I don't think he'll forget that again!
Finally, David had the option of remaining in the clinical trial. The company conducting the trial has not seen the results they had hoped from this treatment. Of about 400 participants originally in the study, about half have actually died. This is sobering to say the least! However, they do think that maybe for a certain specific population, the treatment has been beneficial. So the FDA agreed to let them continue the study in hopes of narrowing down the characteristics of people who have had success with this treatment. The FDA basically said it wasn't hurting anything so go ahead. Anyway, David decided to stay in because something is working right now.
And now a little about the actual trip. Monday evening the scans took forever, they were horribly (lol they said 30 minutes-NOT) behind.
But Tuesday morning his appointment was at 10am. Guess what time we were sitting in the Drs office? 10 AM! What!?! We were on the road home by noon. That is a true Christmas miracle!
Thank you for all your prayers, especially Monday night. They were definitely felt! Please continue to pray for no new lesions and no new growth. Also pray for David to feel better and no further damage to his spleen.
And if you don't have cancer or are not close to someone who does, I think you are in a small minority. MDA is crowded with patients from all over the world. It is a premier facility in the fight against cancer. Unfortunately they are not going out of business anytime soon. Never take your health for granted!
Thank you for loving us!
Glad you got news that things are STABLE. And very glad he gets a choice about the trial! Go meds go! (Umm, when does he get to use cannabis drops? I've heard they are awesome for pain and discomfort!)
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