Mixed up

Our day started really early with 6 am blood work. This was after I had to wake up at 4:30 to get ready, only to find I had left my makeup bag at home. I prayed, 'please don't let this be an indication of how our day will go!'

So, I put some lipstick on my cheeks, and braved the world, au naturale!  Guess what? NO ONE CARED. Prob because of my great natural beauty.  Ha! No, prob because everyone I saw is dealing with much bigger things!

Next David had his CT scan. This scan appt. was a last minute decision so it wasn't in our usual place. We had to leave our great executive parking reserved for those arriving before the cock crows, and drive down the road. To yet another MDA building. How many DO they have?

Since we were out already, we headed to Whataburger for breakfast instead of our usual MDA cafe cuisine.

We had 2 hours until the Dr. appt...our plan was to visit Greg in the hospital for a brain procedure yesterday.  But when we got to his room, he had already sprung himself! Didn't even wait for his wife! Congrats! Glad they made it out early and on to more happy destinations!

So we headed to Dr. T's office. And waited. When we got there the wait board said 'less than 30 minutes' wait time. Then it was changed to '30 minutes to 1 hour' then '1 hour to 1 1/2 hours'. There was a man explaining the board to another patient. I was just laughing inside. Rookies. The board means NOTHING.

Finally we see the nurse and answer the usual questions. The nurse says they are almost caught up on their MORNING appts. It is about 1:30. In the afternoon. Then we wait some more. In less comfortable chairs. Finally Dr. T sticks his head in the door and says in his loud Lebanese accented voice, 'great news, shrinkage!' And makes shrinking motions with his hands. And he is gone. For a looooong time.

We don't care. We are so happy to hear the words shrinkage. Lol. Insert your own joke here.

Every time they make us wait longer than the usual long time, it seems the news has been not great.
This might just be our imagination. But it's like they are trying to figure out the new game plan. So a long wait + good news = happy people that don't mind waiting longer!

The plan. We go back in 6 weeks. David is still in the vaccine trial so that is the date we would have gone back anyway. He will have another scan. As long as the scan shows no progression, we pray more shrinkage, he gets the vaccine and continues on this course. For 3 months! We won't have to go back for 3 months and they will consider the disease stable! Then more scans, and so on. Hopefully for a long time this med will work! If not, they change meds and the vaccine trial stops.

They also gave him a plethora of prescriptions for the side effects he is having. Diarrhea, high BP, low thyroid, and foot pain. Yea side effects.  But he is not having the metallic taste and he says that was the worst. Really?

I told him get the prescriptions instead of OTC. They will be free as soon as we meet the new year deductible. That started September 1. Joy. It won't take long to meet it. The Inlyta will max it out in less than 2 months. Cha-ching.

So we were happy.

Please pray for:
1. Continued shrinkage of nodules
2. Relief from side effects

But sad things happened today. So my great joy is mixed with much sorrow. A sweet family lost their husband/father/grandfather to cancer this morning. And another sweet family has placed their husband/father on hospice because of cancer. Oh cancer, how I despise you.

As you pray for David, please also lift up these 2 families, Wade and David.

Also please continue to pray for Mary, Greg, Betty, Ty, Holli, Laura's mother, all battling cancer and Amanda's mother, liver transplant.

Thank you for loving us!