Yesterday David had blood work and his chest/abdomen scan. His Dr. appointment was at 9:30 this morning. Since we really do understand that time means nothing in the world of MDA, we thought if we made it out of there by noon it would be great! Hahahahahahaha.
The scan came back stable. So no more shrinkage, but no growth. This is good. So he can stay on this med (Inlyta) and will remain in the study. Hopefully for a long while. Also the foot pain he had, has resolved!
The bad news, but it's okay, is some of his blood work was wacky. Thyroid, potassium, magnesium, and creatinine were all slightly low or high, whichever is wrong, that's what they were. This is because:
1. David has been having a lot of intestinal issues with the Inlyta. As a result he has lost about 20 pounds. In 6 weeks. That would be great for me! But not for him.
2. HE DOESN'T DRINK ENOUGH WATER. Why am I yelling? Because I keep telling him HE'S NOT DRINKING ENOUGH WATER. And I was right. Yea me.
So they are giving him a week break from the drug. And when he starts back up, they are reducing the dosage from 10 mg to 6 mg daily. Hopefully this will give his body a break, allow him to get back on track eating and pooping regularly, and then be a dosage his body will tolerate better. But still keep the nodules stable.
They also gave him a couple different drugs for nausea and diarrhea.
Yea! Now it is about noon! We still have to wait 30 minutes to check for reaction to the vaccine and pick up the prescriptions.
We go turn in the scripts and they say it will be about an hour or so. Grrr. Okay back upstairs to have injection site checked. All good. Back down to pharmacy. We wait. About another hour. Finally his name is up on the ready board! Yea! But wait, now it's off again. What?
The insurance company says no to 60 days. They will only approve 30 days. So they have to refill it. Another 30 minute wait. So we are finished and finally out of there after 2. Oh well, nothing new under the sun and basically a good report. We go back in 6 weeks, just for blood work. Next scan 12 weeks, yikes!
Please continue to pray:
1. Yucky side effects go away!
2. No progression! More shrinkage!
Also continue to pray for Ty, Betty, Holli, Mary, Greg, Laura's mom and Amanda's mom. And for the families of Wade and David, who now have been made whole with our Lord.
Thank you for continuing to love us so much!
